New

Patient Advocacy Specialist, Global Rare Diseases

Chiesi
remote work
United States, Massachusetts, Boston
One Boston Place, Suite 4000 (Show on map)
Jul 26, 2025
*About us* Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with 90 years' experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people's quality of life by acting responsibly towards society and the environment, the Group research, develops and markets innovative drugs in its three therapeutic areas: AIR (products and services that promote respiration, from new-born to adult populations), RARE (treatment for patients with rare and ultra-rare diseases) and CARE (products and services that support special care and consumer-facing self-care). We are proud to be the largest global pharmaceutical group to be awarded B Corp Certification, a recognition of high social and environmental standards. We are a reliable company that adopts and promotes transparent ethical behavior at all levels. We are committed to embrace diversity, inclusion and equal opportunities. In fact, we are a global family made up of different cultures, different genders, generations, ethnicities, abilities, sexual identities and many other enriching diversities. *Chiesi USA* Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for the hospital, adjacent specialty and rare disease markets. We are a B Corp and Benefit company awarded Top Employer status for six consecutive years and certified as a Great Place to Work. At Chiesi, we share an entrepreneurial spirit and act as a force for good, pursuing high social and environmental standards, to ensure the wellbeing of our people, patients, and communities. We offer a work environment where professionals have the opportunity to build a purposeful career focused on helping others while achieving a fulfilling work-life balance, meeting exciting challenges, and engaging in important and rewarding work. *Who we are looking for* Purpose Chiesi is looking for a creative, highly motivated, and compassionate individual for the position of Specialist, Patient Advocacy in the Rare Disease business unit. Reporting to the VP Global Patient Advocacy, the Specialist will assist with management of internal and external projects in conjunction with the PA team and cross-functional partners in the Americas (US, Canada, & LATAM). This position will lead regular project team meetings for the tracking and alignment of project requirements and deliverables as it relates to overall PA and business needs across various internal and external project/programs. This includes developing plans, schedule creation and tracking milestones, monitoring variances to plan, reporting progress to stakeholders, and ultimately ensuring all project milestones and objectives are successfully met. The Advocacy Specialist plans, organizes, and leads cross-functional project meetings and collaborates with PA project owners and participates in PA and cross-functional meetings. They will be the subject matter expert in internal processes and will be tasked to identify and lead initiatives to increase efficiency, and improve communication, particularly with existing and new digital tools. A key component of the role is to breakdown potential silos across strategic disease areas, foster intra/extra team collaboration, and propose projects/programs to improve our way of working. Main Responsibilities Lead and coordinate internal PA project team meetings to review and track project requirements, timelines, and deliverables. Coordinate PA projects across various stakeholders identifying interdependencies, milestones, and risks. Maintain and update milestones in internal tracking and workflow documents. Facilitate projects, initiatives, and project meetings. Create/maintain project scope, timelines, budgets, team, project plan and project objectives/goals. Facilitate strategic discussions with core team members across multi-functional groups. Track and monitor project progress including financials, schedule, resource constraints, risks, contract status, and other appropriate project performance indicators. Prepare and conduct presentations to all levels of the organization. Work with PA Leads to prepare and maintain required project management documents and tools to facilitate project timelines and team communication, meeting planning, and documentation of decisions and action items. Support project administration by capturing and issuing agendas and meeting minutes. Understand and integrate Chiesi GRD core values and behaviors into daily project interactions. Experience Required Strong communication, networking, and interpersonal skills. Strong Microsoft Office suite competency. Good listening skills and ability to identify needs from multiple stakeholders; ability to translate terms and concepts to audienceswith different perspectives and levels of understanding. Ability to work collaboratively across all internal functions and levels of influence. Strong project and program management skills. Experience in the bio-pharmaceutical environment with exposure to rare disease and patient advocacy a plus. Based in Boston, MA with some national and international travel (approximately 15%). Education Undergraduate degree in social science, public health, or related field. No matter where your path starts at Chiesi, it leads to inspiring possibilities. Your future is our focus, and we are committed to nurturing your development in our dynamic, friendly environment with access to resources and training every step of the way. We provide top-class benefits, including comprehensive healthcare programs, work-life balance initiatives, and robust relocation support. Our salary package is competitive, comprising a basic salary, performance bonuses, and benefits benchmarked against the external market. Additionally, we offer flexible working arrangements, remote work options, and tax assistance services for foreign colleagues, all designed to help you thrive. Chiesi USA is an equal opportunity employer committed to hiring a diverse work force at all levels of our business. All qualified applicants receive consideration for employment without regard to race, national origin, age, sex, religion, disability,marital status, veteran status, or any other basis protected by local, state or federal law. This policy applies with regard to all aspects of one's employment, including hiring, transfer, promotion, compensation, eligibility for benefits and termination.